- Views 345
Public involvement – involving patients and the public in the process of research design – is a cornerstone of responsible research and innovation. But how can you meaningfully involve the public? And when is it appropriate to do so?
- The importance of involving patients and the public as stakeholders in the process of research
- Benefits of public involvement to the lab-based researcher
- The role of networks in promoting public engagement
- Strategies to increase accountability and relevance of public-funded research
- An understanding of the value of connecting patient and public engagement in regulating animal research
- Tools and training for public engagement
Vinodh Ilangovan, member of the eLife Early- Career Advisory Group, Max Planck Institute for Biophysical Chemistry, Goettingen, Germany.
Dr. Emma Dorris is a molecular biologist, based in the Centre for Arthritis Research at University College Dublin, Ireland. Emma leads a Public and Patient Involvement initiative called The Patient Voice in Arthritis Research. This aims to develop patient and researcher partnerships with the goal of reframing research to focus on the patient rather than the disease. Emma is an eLife Ambassador, and leads the public involvement in research initiative; an international collaboration to help scientists involve the public in research that is not naturally public-facing, including basic and laboratory research in the life sciences.
Diogo Gomes is the Public Engagement Coordinator for the School of Clinical Medicine and Biological Sciences at the University of Cambridge. He is responsible for developing strategies and practices as to embed a culture of excellence in public engagement with relevant areas of research at the University. Diogo holds a PhD from the School of Education National University of Galway, Ireland. His research focused on the partnerships between science education at primary level and public engagement initiatives offered by universities.
Prof Gail Davies and Dr Rich Gorman are currently working on the Animal Research Nexus, which is a large collaborative programme using the humanities and social sciences to understand the changing social relations around animal research. Work at the University of Exeter is focusing on the rise of Patient and Public Involvement (PPI) in basic biomedical research and supporting meaningful conversations around animal research in the future. Gail’s research looks at the changing ‘geographies of knowledge’, including public engagement methods, international scientific collaborations, and translational research. Rich is interested in how health intersects with people’s ethical and emotional relationships with animals and opens up complex policy interfaces relating human and animal care.
We welcome comments, questions and feedback. Please annotate publicly on the article or contact us at hello [at] elifesciences [dot] org.
Interested in our full selection of #ECRWednesday webinars, on topics such as preprints, finding funding and more? Take a look at the collection of past reports and recordings.